2009 WINTERSKÖL HIKE FOR HOPE
HELP FIND A CURE FOR MUSCULAR DYSTROPHY
SUNDAY , JANUARY 11th, Start Time: 7:30 a.m.
BUTTERMILK MOUNTAIN, ASPEN, COLORADO
Who are we?
We are parents of a son who has an incurable disease called
Becker Muscular Dystrophy. Our mission is a grassroots effort
to bring focus and research to DMD, Duchenne Muscular Dystrophy,
and the leading killer of young boys. Becker Muscular Dystrophy
is a less severe form, but just as frightening. One in every
3500 boys are born with DMD. Every day two boys die of DMD.
This is a genetic disorder, approximately 60% of the mutations
are hereditary, but because it is random, most families don’t
know of its existence. 40% of the time it occurs because of
a spontaneous mutation at birth. Simply put this is a muscle
wasting disease. The prognosis has been the same for years:
Wheelchair by 9 – 12 and life expectancy between late
teens and early twenties. IT CAN HAPPEN IN ANY FAMILY. We
have learned that DMD is an “orphan” disease and
that pharmaceutical companies do not invest in bringing cures
to market because the number of end users does not make it
profitable enough. So we have taken matters into our own hands
and embarked on a path to affect change.. to raise the funds
needed to cure DMD and BMD in our son’s lifetime.
At this time 100% of funds raised go to an amazing doctor
whose research takes place at Harvard Mass General Hospital, in Boston Massachusetts. We continue to look for and determine
the most viable research projects. We hope that one day, no
longer will young boys have to cry because they can’t
keep up with their friends because their legs cramp, no longer
will they need wheelchairs or have to go to a camp to feel
and be “normal” and most importantly no longer
die before they have a chance to really live! Our vision is
to draw awareness to the fact that there are far too many
incurable diseases killing our children, let’s put a
stop to this now!! With your help we can take a step for hope,
take a step to cure, take a step
because we can.
You should know that every penny of your gift goes directly to the research lab and no funds are to be diverted for paying indirect costs or institutional overhead. That means 100% of the money raised goes to research. All expenses are donated. No payrolls. No profits. Your dollars go directly to the lab to help find a cure.
  Hike for Hope is operating under the HIKE FOR HOPE FOUNDATION
INC
936 W Francis St., Aspen, CO. 81611
Tel: 970-925-6137,
Tax-exempt 501 (c)(3)
charitable organization.
Tax ID 20-3596738
Designed and Donated by Roaring Media www.roaringm.com
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