Playing: I love you from Barney


Nicky's Webrings and Awards

~Nicky's Realm on the Web~
[Nicky's Page] [Nicky's Story] [Nicky and Epidermolysis Bullosa] [Surgery Tales] [Picture Gallery] [Halloween Gallery] [Recent Photos] [1st Birthday] [2nd Birthday] [3rd Birthday] [4th Birthday] [5th Birthday] [6th Birthday] [DisneyWorld 2000] [Nicky's Wish] [Nicky's friends] [Nicky's Toy Zone] [Nicky's Web Rings and Awards]

Web Rings

Thanks for stopping by...Happy surfing :)

Awards

Thanks for creating an informative site.
Thank You Kristi!!

Thank You Cyndy!!

from his Aunt Shelbie...<gg>

Thank You Marc's Mommy!!!

You and your family are an admiration:)
Thank You Kat!!

Thank You Heather!!!

I was surfing the ADHD web ring,I found your remarkable page. You have a wonderful site and I have enjoyed my visit here, You have obviously put alot of time and effort into your page and it shows. Keep up the good work!

Thank You Carolmana!!

Nicky's special page has really touched
me... I am sending you a special award for his page, on behalf of my little friend BRYAN
who died in January from Leukemia...
My prayers are with you and your
beautiful little boy...

Thank You Julie!!

Click here to go to Julie's page dedicated to all the special little angels growing up with difficult diseases. It is called:
>>"Bryan's little angel friends" Where rainbows grow... Angels sing... And courage becomes contagious... Cancer and Childhood diseases links.<<

Glenn Willing's Homepage


I visited your little boys webpage, and kind of flipped over him. My heart is with him very much. I would very much like to give him an award for his webpage. He is a very sweet little boy, and I know that you are very proud of him.

Texas Daddy Of Six Boys joknstuf@1starnet.com

Craig Willing (7 YO) Multiple Handicapped * Zach Utsinger (4 YO) Mild Autism * Ladale Willing (11 YO) PDD & CP * Jimmy Willing (8 YO) Moderate Brain Damage * JJ Utsinger (6 YO) * Henry Willing (14 YO)

Thank You Texas Daddy! You're an inspiration to us all!

Thank you for putting something so wonderful on the internet
for others to enjoy visiting!

Thank You Cyndy!!

I ran across your page today,
and Nicky touched my heart....*S*

I wanted to let him know that he is thought of....
Red Silk

Hello and Congratulations!
You have been chosen to win the Mommies on the Web Outstanding "Special" Achievers Award. Mommies on the Web is an internet community offering support and friendship to moms on the Web, and each week, we choose one site to be our site of the week. This is a site that we feel all our members should visit.
Your site is excellent, and we want all our members to know about it.

Congratulations on having created a quality site!
Sincerely, Lori Hilty
Mommies on the Web Awards Counsel Leader

Hello Your site is touching!! All children are miracles from God...
God bless, Doris

Just sending you an award for Nicky
from my kids and one for you.
"An outstanding page you have."!!!!
Thank You Alisha

Some may own castles on the banks of the Rhine,
and hire an orchestra each morning at nine.
But richer than I they will never be...
I had a mom who made Web pages for me!

~Nicky's Realm on the Web~
[Nicky's Page] [Nicky's Story] [Nicky and Epidermolysis Bullosa] [Surgery Tales] [Picture Gallery] [Halloween Gallery] [Recent Photos] [1st Birthday] [2nd Birthday] [3rd Birthday] [4th Birthday] [5th Birthday] [6th Birthday] [DisneyWorld 2000] [Nicky's Wish] [Nicky's friends] [Nicky's Toy Zone] [Nicky's Web Rings and Awards]

 

My child has a skin problem called Epidermolysis Bullosa.
This is a long fancy name for a condition of the skin where a certain protein is missing from the top layer of the skin called the epidermis. Because the skin is missing this protein, blisters develop easily. This can occur after a slight bump of the skin, or can occur on the bottom of the feet from walking too much. Many of these blisters are painful, but most people with EB get used to them over time. My child will often wear bandages to protect the skin and allow healing underneath.
This condition is not contagious. You cannot catch anything. Unfortunately, there is no cure for EB right now,
but many doctors are working to find help for EB. If you wish to donate money or to find out more about EB, we would appreciate your contacting the following national organizations which are looking for a cure.
Thank You for your concern.

EBMRF
130 Sandringham Road
Piedmont, CA 94611
Tel (510) 530-9600

DebRA of America, Inc.
40 Rector Street, Suite 1403
New York, NY 10006
Telephone: (212) 513-4090 - Fax: (212) 513-4099


I don't know of any disease that children face that causes such long term suffering. You know, you have children that have things that take their lives, but, this disease, they suffer emotionally and phisically for a long
long time before they either die or...well, and actually in the severe forms that's what happens.
Lynn Anderson (President of EBMRF

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