Welcome... This site is designed to provide patient to patient support, as well as, organized links to web resources for those dealing with central retinal vein occlusion (also known as central retinal venous occlusion or central retinal vein thrombosis.)
Getting Started...
What is CRVO? - An introductory video. (More Videos)
If you need help finding a physician, or knowing what questions you might ask at your next appointment, then click on: A Patient's Perspective - where you will find brief suggestions from a fellow patient.
If you would like to know more about the medical condition - CRVO, then try: Educational Links - where you will find video clips and an assortment of introductory, as well as, more technically advanced web links. Definitions for 60+ CRVO related terms are one mouse click away. Or if you just need some quick answers to questions like "What are the chances that this will happen in my other eye?" try this link to Frequently Asked Questions from the University of Iowa.
If you are interested in learning about investigational treatments for CRVO, then try using:
Investigational Treatments which includes links to information on intravitreal injections (Avastin, Lucentis, Macugen and Kenalog) as well as surgical procedures such as radial optic neurotomy.
If you would appreciate talking to others who have been diagnosed with CRVO, join our continuing discussion at CRVO Support. If you would like to read older stories try out the email archive.
Lastly, many patients have been kind enough to respond to the Retinal Vein Occlusion Survey and to the Intravitreal Avastin Survey. Survey results are available at Surveys.
Disclaimer: This web site is not authored or edited by a physician. Within this web site any statements, or lack thereof, should not be construed as medical advice. Information contained herein may be out of date or inaccurate. Pertinent information may have been inadvertently omitted. Furthermore, material referenced by quote, or by web site link, or obtained through any and all e-mail correspondence (including third parties), may not be complete, accurate, current, appropriate or authentic, and as such, should not be relied on when making medical decisions. The author assumes no responsibility for the services, or lack thereof, of any healthcare provider referenced in or through this site. Consult your physician without delay.
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