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| I was diagnosed with 'Fibro' in 1980, after years of suffering from constant, devastating pain. I went from one Dr. to another, and always given the same answer. We can't find anything wrong with you. Blood tests, X-ray's showed nothing. I was finally referred to a Rheumatologist, who, within 15 minutes, diagnosed me with Fibromyalgia Syndrome. I had explained my symptoms to him, and being a specialist, he knew what to look for. I, like most people back then, had never heard of it. But Thank God, someone gave me a name for my pain, and I know longer felt I was 'Going Crazy.' The only way I know how to describe the pain, is that you feel you have been physically beaten every day of your life. In my case, there are very few places on my body that aren't painfully sore to the touch. Even a hug will sometimes make me wince in pain. I worked at jobs for over 11 years with this horrible pain. But with flare-ups, physical therapy, hospitalizations, and medication,nothing would stop the pain. I would have to be off work for long periods of time, until the day came that my Dr. said I could no longer work. It affects more than just your body, it also causes many other physical problems, lack of concentration, thinking capabilities, etc. Most of the time, when you hear the word 'Fibro', right behind it is Depression. You can't live day to day with this pain, and not become depressed. Many people think 'Fibro', is more of a Mental problem than physical, and that makes me so mad. I also suffer from Bipolar Disorder, so believe me, I know the Stigma, that still, in this day and age, that goes with Mental Illness. Try to get Life Insurance?...No way. There are still those that feel that we should be kept in a 'Rubber Room'. Living a normal life, (for me) is impossible. 3 marriages, each time thinking, this time, this man, will understand and support me. Although each have tried, it seems to always turn out the same. They tire of putting up with my pain, mood swings, and my life. I can't blame them, they don't understand. My children are grown now, and they try very hard to be supportive. But I know in my heart, they also tire of hearing about my pain, coping with my mood swings, my being unable to be like everyone else's Mom and Grandma. I make plans with them on a 'Good Day', and have to cancel out the next. I can't blame them, they don't understand. The same with the rest of my family and friends. Many days I want to run away, and hide forever so they don't have to 'put up with me'. To wake up every morning, knowing I will spend the day in pain, is exhausting in itself. Harder is trying to put a smile on my face, and pretend I am OK. There is no cure yet, but in recent years, the Medical Profession, has become much more aware of the millions of us that suffer, and more research is being done every day. It is sometimes referred to as the 'Invisible Disease', because even the cause is not known. Some say an accident, trauma, or stress can trigger it, but who knows. All I know is, that when it 'Gets Ya', it never lets go. Lots of Love and Gentle Fibro Hugs to you, Glenda (CCsLilSis) |
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| Please click on the links below for more information about Fibromyalgia & Related Disorders |
| Welcome To My World. Come with me on my journey of living with Chronic Pain and Bipolar Disorder. I have the most wonderful and supportive Family and Friends anyone could ask for. And yet, many times, because of pain or depression, I hide away from them. My main reason for this page is to remind them of that when I can't tell them how I feel. To tell then how very much I love them, and how special they are to me. Also to share experiences with others that live in My World of Pain and Depression, and their Families and Friends. Helping others is helping myself. I try to deal with my problems through Laughter and Humor, when I can. Sound strange? Trust me, It helps so much. Even it if means laughing at yourself. Those are the good days. The bad days, I cry. I curl up into a ball, and Hide away from My World. Sound familiar? Look through my Site, E-mail me, and let's all help each other. |
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